Tuesday, August 28, 2012

We make a new Plan

Chemo 6 has been painful and has completely sapped my energy.  I'm taking lots of pain meds, which sometimes work and sometimes don't.  I had 6.2B last Tuesday.  6.2 wasn't as bad as 6.1, but still not very pleasant. 
Victoria and Iris came over on Thursday.  Iris got two hats, lemon and eggplant.  She needs little sweaters, so that has been added to the list of things to do.  I made a Big Girl cape for Jennifer Neal Davis's two year old--she out-grew her sweater.  I also made a sweater for Jennifer's little boy who is due the beginning of December.  I am on the second sleeve of Iris's first sweater.  The little things go together quickly.  It's fun to make them, even if the babies can't wear them too long.  Tiny people need warmth, too.  My standard baby outfit looks so big now when I compare it to the 0-6 month sizes.
I had a CT scan on Friday.  Got the results today.  It was partly good--the lymph nodes that were growing are stable--that's the good part.  There is a new mass--that's the bad part.  So Chemo 6 was sort of working and sort of not.  I didn't have 6.2C today.  I get a week off to try to build back some energy and next week we will start Avastin.  It is given by infusion, but Dr. Chee said it isn't exactly chemotherapy.  Maybe it won't suck up as much energy.
That's about it.  I'm knitting and reading and getting lots of sleep.  It is hard to believe that Labor Day is coming up.  This is the third year without the Gateswingers at Jones Gulch.  I miss fiddling all weekend, but I'm sure I couldn't make it from the cabin to the dining hall or the cabin to the dance hall.  Still, that's where I started fiddling and I'll miss it.
xxooxx

Tuesday, August 14, 2012

Chemo 6.2A

Things have been somewhat boring lately.  I'll take that.  Picking up where I left off, I had an appointment with a healer on July 28, hoping to make up for missing my Reike at Sonoma.  It was interesting, but I don't think I need to go back.  The focus was on my non-existent energy.  I'm letting other people suck it off of me and I have to be stronger about not letting them do that.  I like Diane better, but I think she would tell me the same thing.
The 30th was an extremely stressful day.  Those of you who know about it will understand why it isn't going into the blog, other than to say it was difficult.  I have now declared my life a drama-free zone, which I'm keeping, for the most part.  The 31st was supposed to be chemo 6.1C.  Ally took me, because Gretchen and Jim's plane was due in from Scotland, and Glenn had agreed to pick them up at the airport.  My white count was low, so no chemo.  They gave me a two week break--I was thrilled.
Iris and Victoria came to visit on the 3rd.  I'd made iris her third hat--this time a raspberry.  Holding Iris is pretty high on my list of favorite things to do.  She's growing, bit by bit, but is still a pretty precious little bundle.
The Olympics have been on, and that is quite time consuming.  I always feel that if I don't watch them then they won't award the medals.  I recorded a lot because it conflicted with my Giants schedule, and the Giants are part of my therapy.
Last night, we did a re-do of Glenn's birthday.  Ally and Monica joined Glenn and me for dinner at the Beach Chalet.  I scheduled it for that night because I figured it would be the last night this month that I would feel good.  We had a delightful time.  The food was delicious and the company the best.  I was pretty tired when we got there--i actually let Glenn help me into the restaurant.  I get faint, which is not a fun feeling.  After a good, nourishing dinner, I was able to make it to the car on my own.
So, this gets us, more or less, to today.  I had chemo 6.2A.  My doctor decreased the dosage, hoping to get all three doses in this time.  6.1A was way worse.  I hurt before we got into the car for the trip home.  It wasn't as bad this time.   Hope it stays that way.
That's it, you are now up to date.
xxooxx