I haven't blogged because I've been feeling poorly, so I haven't done anything. Last night was my sleep study, so that was a change of pace. I've been sleeping with a CPAP since Feb 1996. Users of CPAPs are entitled to new supplies every six months. I haven't taken full advantage of this, about a year ago, my mask and headgear were getting a little ratty, so when the automatic caller asked if I wanted new stuff, I pressed the button for "yes." Ms Automatic Caller also wanted to know if there had been a change to my insurance. Well, yes, I went on Medicare August 1 and it became my primary coverage. Oh. Medicare didn't care that I'd been using the thing, successfully, since shortly after Noah got off the ark, they needed me to see my primary care provider who needed to let my supplier know that I still used the CPAP and was benefiting from it. The wording had to be very exact. So in August, I saw my doctor and told her what Medicare needed. Not a problem and we moved on to my left heel--see last year if you are really interested in that. I didn't think too much about it. Then came September and the fire and I had other things on my mind. When I got around to remembering that I needed new stuff, I guess it was November. Called the supplier who said they hadn't gotten the correct wording form my doctor. I called the office, told the girls what I needed, and waited for supplies. Another month went by and no new stuff, so I called them back. By now, I was on a first name basis with the supplier. She said she would call the doctor's office and tell them exactly what I needed. Then came December and the bowel obstructions. When I finally saw my PCP again, maybe even after my surgery, I asked who I had to sleep with to get the correct wording for my CPAP supplies. She promised she would take care of it. She must have sent the magic words, because eventually, I got my new supplies.
You would think that would be the end of it. But no. I got a call from my supplier saying that they needed a copy of my sleep study. That was three doctors ago and in the end of 95. 95? Oh, they are only good for 10 years. Could I have a new one to make Medicare happy? So last PCP appointment I mentioned it. Doctor said no problem, she'd arrange it. I got a call from Mr. Sleep Study guy a few days later and we set up an appointment for last night. At least it was close to home. The one in 95 was at a hospital about 20 miles from home. This would be in a clinic near my yarn shop.
I got there just before 9 last night. There was a receptionist and two technicians. I was shown to my room, got into my jammies, and was wired up for everything. The whole process took about 45 minutes. Now relax and go to sleep. I settled down to read and get sleepy. The surprising thing is that I did go to sleep eventually. After two hours, the technician came in and connected me up to a CPAP. Relax and go back to sleep. Sure. It took longer and for some bizarre reason the theme song from Lambert the Sheepish Lion was running through my brain--that was a cartoon from the late 50's or early 60's and I'm pretty sure that the only other person who still knows it is my friend, Roz--and I only knew she knew it was that we saw a play with a character named Lambert when we were in Jr or Sr High School and we both started humming the song. Anyway, I finally got back to sleep, only to be waken at the ungodly hour of 5 AM and they started disconnecting me. I still have sleep apnea and still need the CPAP. They will send a report to my PCP who will send a copy to my supplier, who will have it on file for Medicare, and supplied will once again be available every six months. Medicare gets to pay the bill for the unnecessary process. Medicare would have saved themselves money if they had just taken my word and the fact that I've been sleeping with this thing for over 15 years. It is almost as though the government thinks that the earth only just started rotating when I went on Medicare and so we'll need to reinvent the wheel for a while.
I got home at 5:45 and went back to sleep till 10.
xxooxx
Thursday, June 30, 2011
Thursday, June 23, 2011
Chemo 3.5
The wedding dress is my age, having been worn by Abby's Mother and Grandmother. It has been a joy to watch this young woman grow up.
Other than this bright spot, my time has been filled with doctor appointments and knitting. I have discovered sock yarn. Sock yarn comes in amazing colors. You can make socks, but you don't have to. Here are two of the latest:
Fun to make, fun to wear. I have several projects going on right now. They keep me out of trouble.
Chemo 3.5 was not without drama, but I'd rather not dwell on it. It's done and now I'm recovering. I have felt worse, but I have also felt better. Glenn has been on vacation this week, so I've been all by myself--probably a good thing. I don't have to be charming. The Giants remembered that they are part of my therapy and gave me a good game last night--what more could I ask for. Today is a day game, so I'd best get to it. They do require my presence to have a prayer of winning, after all. And I get to knit while I'm rooting them on! What could be more perfect.
xxooxx
Thursday, June 9, 2011
Catching up yet again
I was reminded tonight that I haven't blogged in a while. That usually means that not much has been going on. This last chemo wasn't too bad, though my counts were still descending. I had another transfusion of two units last Monday and I'm starting to feel peppier. I've had my mammogram--negative as i expected, saw my cardiologist--everything good there It's hard to remember, when I have this big cancer thing going on, that I have other parts of my body that are in great shape. The cardiologist was very good news, since congestive heart failure can be a side effect of the Doxil I'm on.
The living room TV spent a week in the TV hospital and came home today good as ever and only $165. I don't think I could have gotten a new TV for that, so I'm happy. I never thought I'd get tired of watching TV in the bedroom, but I did. It's nice to have it there, but I like my Queen Anne chair.
I can't remember if I've talked about Charles. I think I have. Charles was the security guard at my therapist's office. Charles is one of those people who make your life better by being in it. Charles would say "Good morning, Beautiful," and I would feel beautiful. I'm not beautiful, but I felt beautiful. Charles was an excellent hugger. I got a hug on my way in and on my way out. When I got to my appointment two weeks ago--no Charles. His place was filled by some other man. I pointed out the obvious, that he wasn't Charles. Charles was moved to another building. My heart broke. Wherever you are and whatever you are doing now, Charles, I miss you and will always love you. I still get to see my therapist, and that is a very good thing, but Charles was a blessing.
I think that catches things up. We had Eastern Star tonight and elected four new members. I'm very excited. The first time I was Worthy Matron, we had four initiations--I don't want to make that record--meeting once a month as we do now, we don't have time.
I think I have NOTHING to do tomorrow. Saturday is a wedding. I have to keep reminding myself. I'm looking forward to it, even though I've known the bride all her life--and she's old enough to get married! I love weddings--the ceremony itself. Receptions are OK, but I love weddings.
That's it for now.
xxooxx
The living room TV spent a week in the TV hospital and came home today good as ever and only $165. I don't think I could have gotten a new TV for that, so I'm happy. I never thought I'd get tired of watching TV in the bedroom, but I did. It's nice to have it there, but I like my Queen Anne chair.
I can't remember if I've talked about Charles. I think I have. Charles was the security guard at my therapist's office. Charles is one of those people who make your life better by being in it. Charles would say "Good morning, Beautiful," and I would feel beautiful. I'm not beautiful, but I felt beautiful. Charles was an excellent hugger. I got a hug on my way in and on my way out. When I got to my appointment two weeks ago--no Charles. His place was filled by some other man. I pointed out the obvious, that he wasn't Charles. Charles was moved to another building. My heart broke. Wherever you are and whatever you are doing now, Charles, I miss you and will always love you. I still get to see my therapist, and that is a very good thing, but Charles was a blessing.
I think that catches things up. We had Eastern Star tonight and elected four new members. I'm very excited. The first time I was Worthy Matron, we had four initiations--I don't want to make that record--meeting once a month as we do now, we don't have time.
I think I have NOTHING to do tomorrow. Saturday is a wedding. I have to keep reminding myself. I'm looking forward to it, even though I've known the bride all her life--and she's old enough to get married! I love weddings--the ceremony itself. Receptions are OK, but I love weddings.
That's it for now.
xxooxx
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