Sunday, July 22, 2012

Chemo 6.1A

Just to continue on from the last post, I heard that the grandmother didn't survive the fire.  What a dreadful way to go.
Friday afternoon, I went to the knitting shop because I have found an instruction that even I can't figure out.  No luck with Kathryn, the owner, she couldn't figure it out either.  We did find a web site, so I wrote to them for help.  SINCE I was at the yarn shop, I just had to get the pattern for little fruit hats for size infant to T-2.  And yarn;.  I've made a blueberry and a strawberry.  When I got home, I ordered more fruit colors.  Yes, I do consider my hand slapped.  I ordered this yarn form the Loopy Ewe.  The awful bad thing that happened there is that I now have ordered so much from them that I have a $25.00 credit.  That means I have to order more yarn--and I've got a huge Wish List with them
I didn't feel like reading on Sunday,  Not a problem, there were backup's ready to take over, and kind sisters to keep me together.  I hate weeping through all of church, but what better place to do it.  The space is filled with people who love me deeply and care about me.  People who are willing to dry my tears. People who understand.  The worst part about crying in church is that it's hard to sing the hymns when my voice is croaky.  We had a blessing of the new trees after the service--one of the branches is in memory of Lee--followed by a reception--perhaps leftovers from the Blessing of the Animals that I didn't go to on Saturday,  No, it was a surprise Birthday Party for ME.  I've never had a really honest to goodness surprise party before--one of the disadvantages of being a control freak.  I was deeply touched.  Tears of joy leave your eyes just as red as tears of sadness, but when they dry, You have the joy left over,
Monday was MY BIRTHDAY.  I felt better for PT--not good, but better,  I was able to actually do the exercises.  Stopped at Barnes and Noble with a list of favorite authors and instead of buying a pile of books, bought a Nook.  What the hell, it's MY birthday.  I got lovely flowers from church and from my sister all the way in Scotland.  Glenn gave me a Giant's shirt--the one that says "Got MELK?"  I love it.  I talked to Cindy for a long time--she thinks we're doing the right thing and agreed to write a letter for the cause and see what she could do about getting letters from other friends.  I learned much in that conversation that I really didn't want to know, but really needed to know.  Elaine left a message while I was talking to Cindy,  I appreciated it, but haven't called her back.  My friend Andrea came in the afternoon and we had a nice, spiritual time together.  The only sad thing is that she can't be my executor, so I'll have to put more thought into that.
We had a fun Birthday Dinner at Red Robin (where Ally works).  Monica wasn't feeling well, so it was just Glenn, Dory, Ally, and I.  We had a tower of Onion Rings, various burgers, and an Ice Cream Cake.  I'm not used to eating a lot after breakfast.  I felt like the Pillsbury Dough Boy--but we had a great time--with NO drama.  I know I wanted to be an actress for must of my young life, but I wanted to be a comedienne, do musical comedy,
Tuesday it was time for my new chemo--Navelbine.  I had them schedule me in the morning so that Glenn could have some of his time off for himself.  So we presented ourselves at 10:30.  They had problems accessing my port--I knew the hospital should have used it.  It gets little tiny clots that stick in the tubing when they are trying to get blood return.  I try various positions and they shoot it full of saline and Drano--eventually whatever is there pops, the get blood return, and they can start the process.  I haven't had any kind of chemo since Glenn's birthday--hospital should have used it--it would have saved me a big ugly bruise.  Anyway, since I hadn't had chemo is so long, my numbers were pretty good--except CA125 which is now over 100.  The good newses about my numbers being OK and that I could go ahead with chemo as planned and didn't need a procrit shot.  I got a small bag of premeds--zofran and dexamethesone, usually.  Then out comes the chemo.  It usually comes in a quart bag.  This was in a large Syringe that hooked onto the tubing and was infused over four or five minutes.  After that, I got a small bag of saline, and we were off.  Maybe the quickness of it makes up for the fact that I have to have it three Tuesdays in a row.  It better be working, because I've felt terrible since they started infusing it.  Not fair.  I sure hope it is working, because I feel terrible.  As soon as we got home, I took 2 percocets and a lorazapam and went to sleep.  Glenn got me up at 2 for an appointment with my PCP--who has become Monica, Dory, and Glenn's PCP too.  It was a follow up from the hospital.
Wednesday was a Mark day,  Glenn and Ally didn't want me to try BART, so they lined up a ride downtown for me with my friend Roberta.  I do feel warm fuzzys for the way they take care of me.  Wednesday afternoon, Victoria and Iris came to visit.  It was a lovely time,  I can see little changes in her still tiny little person.  I had a surprise for Victoria.  I started a photo album of her from the time I first met her--she was about 10 days old--my Grandmother and I flew down to Santa Barbara for the day)--until she was about 2.  I think there are more pictures in that book than our mother took of our whole childhood--and I'm jst the Aunt!.  Anyway, I asked her if she would like to have it, since she would get it eventually.  She got a little teary nad said "But it's yours!"  I told her I din't want to hurt her feelings, but I don't pull it out every day and look at it.  I thought since she now had a daughter of her own, it would be nice to make the comparisons.  I think she was happy to take it.  At least I hope so.
Thursday was Dr. Shen, the Gynological Oncologist.  He just feels around and say come back in 4 months and wish he could make my pain go away.  So do I.  Ride for that was Vicki,.
Friday was a late birthday dinner with my dear friends Gloriann and Vaughn,  We're still laughing over things we did in the 70's.  Old, dear friends are the best.
All this while, the Giants have stepped up to their job as a major part of my recovery therapy.  There's beem a little more drama than necessary, but they have been winning.  Makes me happy.
So here it is--or was--the Third Saturday of the Quarter and time for OMNAB.  I didn't want to go--I still feel pretty crappy--but a local piano teacher was using our Open Mic Night to give her students a chance to play.  I figured short people could use all the audience they could get.  I took my knitting and it helped for canceling Knitting Circle last night.
Well that's it, you are up to the minute, more or less.  I've even managed to take care of necessary Chapter business--Grand Chapter reports, Quarterly taxes to the EDD.  I'm on top of things.  Have I typed the minutes from June yet?  Uh.........
Well. time to get ot bed.
xxooxx

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