Well, after that lovely build up, my platelets were too low to do chemo today. It took them around an hour to decide that. They don't do chemo if platelets are below 100--mine were 48. I was sent home to rest. I'll have my labs on Friday and go back. My nurse said that they will probably lower my dose--she said the first one was pretty strong. So, I have a week of resting and hope that my bone marrow does its job.
xxooxx
Monday, November 28, 2011
Sunday, November 27, 2011
Chemo Eve
I've been a busy little girl this week. Two trips downtown--to see my therapist and get my hair cut--and no, they couldn't possibly be on the same day. Had a delightful phone conversation with a friend from high school and college (thanks for calling, Marjorie--hope you got home safely). Had an even more delightful conversation with my niece. Cooked up a bountiful feast for the family. Elaine came over Wednesday night and helped with the prep work. It's lots of work, but worth every minute. I wasn't going to become a statistic on Friday, but I had to take the girls to the other grandmother's house, which is just down the street from the yarn shop. So I shopped small at a local business--had to get more yarn (everyone who has seen the yarn cave is now groaning). I finished a hat and a sock and am now working on the other sock, a new pair of socks, a pair of mittens, and another hat.
Friday night was Cal football. Go Bears!!! Terribly exciting and they won. Saturday was college football all day. College football and knitting--what more could you ask for? Today was church and an open house given by granddaughter Monica and her roommate Sue. It was a pleasant afternoon with good friends. I wasn't feeling especially good, but I found a comfy seat and let things go on around me.
My chemo appointment is in the afternoon, so I'm hoping to get to Curves in the morning and pick up Christmas cards. I'll work on the Christmas Novella this week. It won't be as long as usual, because there was no big trip. I was pretty much tied down this year--and it sounds like next year will be worse.
I'm ready to get Chemo 4.1B out of the way.
xxooxx
Friday night was Cal football. Go Bears!!! Terribly exciting and they won. Saturday was college football all day. College football and knitting--what more could you ask for? Today was church and an open house given by granddaughter Monica and her roommate Sue. It was a pleasant afternoon with good friends. I wasn't feeling especially good, but I found a comfy seat and let things go on around me.
My chemo appointment is in the afternoon, so I'm hoping to get to Curves in the morning and pick up Christmas cards. I'll work on the Christmas Novella this week. It won't be as long as usual, because there was no big trip. I was pretty much tied down this year--and it sounds like next year will be worse.
I'm ready to get Chemo 4.1B out of the way.
xxooxx
Monday, November 21, 2011
Side Effects
Some side effects are major--hair loss is like that. The first chemo took care of that--second one not at all, and the third time around my hair just thinned out. It is a little early to see what will happen this time around. I've still got five great cranial prostheses and several hats, so I'm prepared if that happens. I've never had a problem with nausea--there's lots of medication for that and if I feel the least bit queasy, I take something.
Then there are the minor ones that are merely annoying, so I tend to forget about them. Mouth sores are now officially on that list. With no warning whatsoever, I woke up this morning with my lower lip encrusted with blood and a popped blister on the inside of said lip. I have stuff for it, but it is annoying.
There are no orc wars, for which I am grateful. I just feel generally crappy. I'm so glad I bought a new duvet last year. Crawling under it and reading or knitting is amazingly comforting. I've felt way worse--see April through August 2008. I've also felt way better. To paraphrase Sophie Tucker, I prefer better.
Thus endeth the whining session.
xxooxx
Then there are the minor ones that are merely annoying, so I tend to forget about them. Mouth sores are now officially on that list. With no warning whatsoever, I woke up this morning with my lower lip encrusted with blood and a popped blister on the inside of said lip. I have stuff for it, but it is annoying.
There are no orc wars, for which I am grateful. I just feel generally crappy. I'm so glad I bought a new duvet last year. Crawling under it and reading or knitting is amazingly comforting. I've felt way worse--see April through August 2008. I've also felt way better. To paraphrase Sophie Tucker, I prefer better.
Thus endeth the whining session.
xxooxx
Sunday, November 20, 2011
Chemo 4.1 days 2 and 3
Day one did not end well. I got all dressed up and went to Pacific Star's Installation. I wanted to go for Marina, who is a first time Worthy Matron. I was hurting, so I left as soon as it was over--didn't even look at the refreshments. I took helpful drugs and set the alarm for 7 to be at church, ready to cook, by nine.
I am glad to say that I felt better Saturday morning. The Dex was doing its job. My face was bright red but I would survive. There were lots of helpers in the kitchen. They all wore name tags reading "Anne's Minion." We start with cranberry sauce--I like to fill the church with Thanksgiving smells. After the cranberry sauce comes the stuffing. Mine is very traditional. Vegetables and sourdough bread had been chopped the day before, so throwing the stuffing together is really pretty easy--especially with so much help. I'm getting much better an giving instructions and letting the Minions do the work. We had five turkeys, all weighing in at a little over 20 lbs. The timing is so much easier when the birds are the same size. We had them stuffed, buttered, and wrapped in tons of foil and ready for the ovens at 11:30. We went home to rest and God did the cooking. Back to church at 4 and took the birds out of the ovens--well, the Minions did that. I wasn't allowed to lift anything. We unstuffed the birds and started sucking up the juices for quarts of gravy. That was my last official act. Kathryn, our new pastor, grounded me and it was up to the Minions to finish the job. The Minions were marvelous.
It is wonderful to see the church full of happy diners. The side dishes and desserts are all pot luck. I was tired, but didn't feel too bad--living better with chemistry. I didn't stay for the Talent Show. It is always good, but I was wearing out and Big Game was on. I have my priorities, after all. I've been following Big Game since the mid sixties. Anything can happen at Big Game. I expected us to be slaughtered this year--that S school being nationally ranked and all. We lead for most of the first half. The Bears played their hearts out and only lost by a field goal. I was very proud of them.
I'm uncomfortable today. I haven't needed as many drugs today as yesterday, but I haven't done as much today as yesterday. I'm still testing the reactions to this chemo. So far, so good. I have Curves tomorrow and a Trustees meeting tomorrow night. I think I can do that.
Thanks for the prayers.
xxooxx
I am glad to say that I felt better Saturday morning. The Dex was doing its job. My face was bright red but I would survive. There were lots of helpers in the kitchen. They all wore name tags reading "Anne's Minion." We start with cranberry sauce--I like to fill the church with Thanksgiving smells. After the cranberry sauce comes the stuffing. Mine is very traditional. Vegetables and sourdough bread had been chopped the day before, so throwing the stuffing together is really pretty easy--especially with so much help. I'm getting much better an giving instructions and letting the Minions do the work. We had five turkeys, all weighing in at a little over 20 lbs. The timing is so much easier when the birds are the same size. We had them stuffed, buttered, and wrapped in tons of foil and ready for the ovens at 11:30. We went home to rest and God did the cooking. Back to church at 4 and took the birds out of the ovens--well, the Minions did that. I wasn't allowed to lift anything. We unstuffed the birds and started sucking up the juices for quarts of gravy. That was my last official act. Kathryn, our new pastor, grounded me and it was up to the Minions to finish the job. The Minions were marvelous.
It is wonderful to see the church full of happy diners. The side dishes and desserts are all pot luck. I was tired, but didn't feel too bad--living better with chemistry. I didn't stay for the Talent Show. It is always good, but I was wearing out and Big Game was on. I have my priorities, after all. I've been following Big Game since the mid sixties. Anything can happen at Big Game. I expected us to be slaughtered this year--that S school being nationally ranked and all. We lead for most of the first half. The Bears played their hearts out and only lost by a field goal. I was very proud of them.
I'm uncomfortable today. I haven't needed as many drugs today as yesterday, but I haven't done as much today as yesterday. I'm still testing the reactions to this chemo. So far, so good. I have Curves tomorrow and a Trustees meeting tomorrow night. I think I can do that.
Thanks for the prayers.
xxooxx
Friday, November 18, 2011
Chemo 4.1
Chemo at 10, home by noon. It started with the usual blood sucking, numbers being good, I started with Dex and Zofran, about half an hour of Topotecan, then flushing the port then home by way of the bakery. I have my calendar for the rest of November and for December--three more chemos and two doctor appointments. It's either going to be a very long six months or very short. I went to Curves this afternoon--everyone thinks keeping that us is a very good idea. I'm not feeling anything from the chemo, though my doctor did increase my long acting pain meds--I told her this morning that I was popping Percocet like they were M&M's. I'm hoping to make it to Pacific Star's installation tonight. I just have to get into a formal, get there, sit there and be cute. I can do that. Tomorrow is the church Thanksgiving dinner. Yes, I'm cooking again. The Dex should keep me feeling good until Sunday. Stay tuned. We'll see how this one works.
xxooxx
xxooxx
Friday, November 11, 2011
I think I've heard this song before
Got the results of last week's scan today. I could have waited--forever. I wasn't really surprised because I have been in more pain lately. My CA-125 (a tumor marker) has increased quite a bit--for me--still below what they normally worry about, but since mine has always been low, we go on relative terms. Relatively, it has doubled. I also have some lymph nodes that have grown. So we start new chemo--Topotecan--next Friday, then Nov 28, a week after that I'll see my doctor and the next week it starts over again. After two of three months of this, we'll repeat the scan and see where we are. Pray for me again--or still--as the case may be.
Last night was chapter installation. That was a milestone for me. I wasn't sure I would make it through the term. I did it. I'm a pretty tough old bird. Don't feel so tough right now, but I'll bounce back.
I finished the scarves for the Grand Star Points and gave them to Grand Adah last night. They are really pretty, but I don't think I want to do another scarf for a long time. I'm now working on a commissioned pair of mittens and socks. When I finish those projects, I'll dig into the boxes of yarn and start working my way through. Good thing I have lots of knitting time.
That's it for now--that's more than enough for now.
xxooxx
Last night was chapter installation. That was a milestone for me. I wasn't sure I would make it through the term. I did it. I'm a pretty tough old bird. Don't feel so tough right now, but I'll bounce back.
I finished the scarves for the Grand Star Points and gave them to Grand Adah last night. They are really pretty, but I don't think I want to do another scarf for a long time. I'm now working on a commissioned pair of mittens and socks. When I finish those projects, I'll dig into the boxes of yarn and start working my way through. Good thing I have lots of knitting time.
That's it for now--that's more than enough for now.
xxooxx
Saturday, November 5, 2011
Catching up yet again
Guess it's time to write something so that my sister won't think I'm dead. I'm not. I realize it has been a while. Last entry was after Sonoma. It was our new pastor's first Sunday. Today was her installation. It was a long journey, but now we are official. The happily retired Pastor Nominating Committee can draw a huge sigh of relief and say to each other, "job well done."
So what have I been doing. I finished the scarves with a week to spare. They were well received. I have an ante-room meeting and Installation left to go next Thursday. I wasn't entirely sure that I would complete my term as Worthy Matron, but I did it. We had a good chapter year.
Grand Chapter was a couple of weeks ago--one of the best I've been to and I've been attending them since 1982. Kim and Don presided beautifully. Everything went smoothly and I never had to correct their grammar in my head. It was really a pleasure. Grand Chapter, as usual, was followed by four days at Yosemite. They were glorious days--warm in the daytime and cool in the evening. We didn't do much, just enjoyed hanging out. There was even a little water in Yosemite Falls. The weather being fabulous, Tioga Pass was open, so we went on to Reno for two nights. Once again, we had a blast. I couldn't lose. Well, I'm sure I could have if I'd tried hard enough and long enough. We didn't have the option of staying extra days this time, so I came out ahead. I came home with more cash than I left with.
Now i really am home. Next Yosemite trip will be in May, and that's a long time from now. I had my follow up CT scan yesterday. I'll get the results next Friday when I see Dr. Chee. I'm not expecting anything bad. I've been feeling good--maybe a little peppy. It's been a long time since I could say that.
You're up to date. I have a new scarf project, but this one is only five and I'm almost done with the fourth one. My goal is to be finished by Thursday. It may happen or it may not. The world will not come to an end. After that is done, I get to move back to socks and hats and try to put a dent in the yarn cave.
xxooxx
So what have I been doing. I finished the scarves with a week to spare. They were well received. I have an ante-room meeting and Installation left to go next Thursday. I wasn't entirely sure that I would complete my term as Worthy Matron, but I did it. We had a good chapter year.
Grand Chapter was a couple of weeks ago--one of the best I've been to and I've been attending them since 1982. Kim and Don presided beautifully. Everything went smoothly and I never had to correct their grammar in my head. It was really a pleasure. Grand Chapter, as usual, was followed by four days at Yosemite. They were glorious days--warm in the daytime and cool in the evening. We didn't do much, just enjoyed hanging out. There was even a little water in Yosemite Falls. The weather being fabulous, Tioga Pass was open, so we went on to Reno for two nights. Once again, we had a blast. I couldn't lose. Well, I'm sure I could have if I'd tried hard enough and long enough. We didn't have the option of staying extra days this time, so I came out ahead. I came home with more cash than I left with.
Now i really am home. Next Yosemite trip will be in May, and that's a long time from now. I had my follow up CT scan yesterday. I'll get the results next Friday when I see Dr. Chee. I'm not expecting anything bad. I've been feeling good--maybe a little peppy. It's been a long time since I could say that.
You're up to date. I have a new scarf project, but this one is only five and I'm almost done with the fourth one. My goal is to be finished by Thursday. It may happen or it may not. The world will not come to an end. After that is done, I get to move back to socks and hats and try to put a dent in the yarn cave.
xxooxx
Subscribe to:
Posts (Atom)